Nine-Year-Old Boy Goes Through Five Organ Transplants Due to Extremely Rare Genetic Condition

Medicine & Technology Jul 03, 2024

The family of the nine-year-old boy had been waiting his entire life for him to receive the five organ transplants from a compatible donor. Read to learn more.

Baby Goes Home After 2 Years in the Hospital for ATR-X Syndrome, a Rare Genetic Condition

Jul 09, 2023

ATR-X syndrome patients also suffer a risk of seizures, with a third of people with this condition having it. Read to learn more.

Chinese Dad Develops Hard-to-Find Medicine to Save 2-Year-Old Son From Rare Genetic Condition

Nov 25, 2021

A two-year-old boy was given just months to possibly live because of a rare genetic condition he is suffering from and his Chinese Dad is determined to save from the illness even if it means developing the medicines by himself.